Moving Mountains Power Point

BASPCAN_Belfast

This link will download the power point I presented at the British Association for the Study and Prevention of Child Abuse on April 16, 2012 as referenced below in the post The Tragedy of Icebergs.

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The Tragedy of Icebergs

Sunday, April 15, 2012, was the 100th anniversary of the sinking of the Titanic, the disaster that caused more than 1500 deaths and resulted in myriads of books, songs, and movies.  The current re-release of the James Cameron 1997 Titanic in 3-D is the highest grossing film in history.

Coincidentally (or maybe not so coincidentally) on April 15, 2012, I was in Belfast, Ireland where Titanic was built.  I was there for the British Association for the Study of Child Abuse and Neglect (BASPCAN) Congress to present on a project I have developed called Moving Mountains.  All over Belfast were reminders that this was the original home of the ship that was built to be unsinkable.  There was a model made of balloons in the Victoria Mall, pictures of the ship on feather banners hanging from lamp posts, various menu items (unsinkable baked potatoes and Titanic ale,) and signs that read, “She was all right when she left here!” implying that the workers of Belfast had done a fine job building her and someone else was responsible for wrecking her.  Then there was the Titanic Experience, with ads touting, “inside, the state-of-the-art exhibits make you think you’re part of the maiden voyage.  Don’t panic.  You aren’t.”

I must say I found the museum quite interesting with even an amusement park-like ride that takes you through the construction process in the belly of the ship.  One oddity, however, that my daughter. Alex  (who came along to the conference and then subsequent jaunt out to the west coast to Doolin with it’s fine pubs, music and ever flowing Guinness) and I discovered was that in the digital reenactment of the sinking, the ship tips up, stern to the sky, slightly twists and then slips silently under.  I think we all know that the ship actually sank about three quarters under and then split between stack 3 and 4 with the two pieces, bow and stern sinking separately.  Asking staff at the museum why this was not depicted correctly we were told, as if no one else had noticed, that seeing the ship break apart might be too upsetting for people.   Hmmmmmmm 1,500 people dead, but a digital reproduction of the ship breaking apart might be too upsetting?

This then is the story of a ship, but what is the story of the iceberg?  The exterior of the museum actually looks like it could be either the Titanic or the iceberg.

This makes me wonder about the iceberg that was just a piece of nature, beautiful glittering ice floating like a moving mountain on the sea, and like the ship, a massive traveler in the north Atlantic.  Icebergs are composed of freshwater and therefore are slightly less dense, 8/9s the density of seawater so only 1/9th of the ice is above the water surface.  After breaking away from a glacier,  bergs flow along, most of their mass and importance  unseen as they are carried by the Gulf Stream into warmer and warmer waters  to slowly melt and disappear entirely.  Unless there is a tragic meeting with a ship, they are doomed to be 90% unnoticed, unrecognized, undetermined.  So the phrase “tip of the iceberg” has flowed into our vocabulary, meaning there is ever so much more than meets the eye.

So meanwhile back at the conference, along with many other professionals including two of my dear friends/colleagues, Linda Burnside, founder of Avocation in Winnipeg, Canada, and Theresa Covington, Director of the National Center for Child Death Review, I was a workshop presenter.  My presentation titled Moving Mountains:  Enabling Children, Disabling Child Abuse was based on several years of research and project development to provide child abuse identification and treatment for children with disabilities.  Early research in the field of child abuse prevalence determined that children with disabilities were abused at approximately twice the rate of typical children.  Later studies reported that the rate was much higher, at least 4 to 10 times the rate of typical children, very difficult to identify and determine.  Working in the field of child abuse treatment I found that often referrals of children who had been abused did not include information about their disabilities and often children with disabilities were not referred for child abuse evaluations.  Children with disabilities who were abused were so often not identified, not treated, not believed, not listened to, not recognized; they were submerged deep in that unseen iceberg, only the tip noticed and helped.  Reaching children with disabilities is challenging.  Like typical children they are usually abused by people they know and who care for them; kids with disabilities just have so many more caregivers and people they have to depend on for their day to day activities.  The challenges of identification of abuse of children with disabilities and their ability to disclose are myriad.  In addition, the justice system discounts the testimony of children particularly with cognitive disabilities; like children under the age of 5 they are usually not considered credible and swearable and cases can only proceed if there is a witness or corroborating evidence.   So the abuse and deaths go unnoticed, unrecognized, undetermined.

After the Titanic sank and the International Ice Patrol was formed in 1914. several pieces of legislation were passed to assure that passengers on ships were safe:  a requirement for ships to check the Ice Patrol’s iceberg sightings, carry enough life boats, avoid ice fields.  Since the deaths of 1,500 people of the Titanic, there have been no other sinkings of ships and loss of life due to collisions with icebergs.  In the U.S alone more than 1,500 children a year die from abuse; 90% of these are children under the age of 3.  The number of children with disabilities  who die from abuse is undetermined.  Year after year the tragedy continues.

So those of us across the spectrum of health providers must be vigilant observers…and listeners.  Children of differing abilities based on their age and on their abilities have different ways of communicating with us and we need to be paying attention to any indicators that a child is at risk or is being treated abusively. We all need to remember that what is obvious, the glowing brilliant tower above the water is not our only concern.  Children, especially those who cannot always speak for themselves, who go unnoticed beneath the surface are the most vulnerable.  We all need to be committed to assuring their care, safety and well-being.  We are all called to be look-outs to save the lives entrusted to us.

Resources:

www.nlm.nih.gov/medlineplus/news/fullstory_121601.html

www.disabled-world.com/disability/…/childabusedisabilities.php

Child Abuse and Children with Disabilities

childabuse.tc.columbia.edu

Violence against Disabled Children

www.unicef.org/…/UNICEF_Violence_Against_Disabled_Children_.

7. Sexual abuse of children with disabilities

http://www.coe.int/t/dg3/children/1in5/Source/…/Brown.pdf

Conversations of the Stars

This past weekend in New York both Passover and Easter were celebrated.  Passover being a commemoration of the passing over of the angel of death thereby sparing the lives of Jewish firstborn children.  Easter is the celebration of Jesus rising from the dead after being crucified.  Whether you participate in these religious rituals and believe in the miracles of lives saved/a life rekindled, or if you just enjoy the family and friendship of a Passover dinner or revel in the fun of an Easter egg hunt, or have no personal connection with either of these religions or these holidays, it is evident that they are both about life and death being inextricably bound together.

Those of us who work in public health frame much of what we do in terms of health problems that increase morbidity and mortality rates, interventions that yield outcomes of lowered rates of mortality and morbidity, measuring the outcomes in lives saved/lives lost, quality of life, costs/benefits, basing evaluations of determinants and distributions of health.  There are experimental studies, quasi-experimental studies, ecologic studies, observational studies, cross-sectional studies and case/control studies.  This all sounds very boring and very academic, but actually it is all about life and death.  A flip through the most recent issue of the American Journal of Public Health reveals:  Genetic Physiological, and Lifestyle Predictors of Mortality in the General Population; Effect of Intensity and Type of Physical Activity on Mortality: the Whitehall II Cohort Study; US Cultural Involvement and Its Associations With Suicidal Behavior Among Youths in The Dominican Republic; Worrying About Terrorism and Other Acute Environmental Health Hazard Events; The Role of Health Systems and Policies in Promoting Safe Delivery in Low- and Middle-Income Countries..  To those of you outside the public health world and even to some of us in the public health world, these studies may seem esoteric and abstract, but they are really about lives lost, lives that can be saved, lives that can be rekindled.

I participate in a few Linked In forums:  Global Health Public Health, Water Sustainability, my New York Medical College group.  The conversations in these groups also are about life and death and pretty much everything in between.  I have met some amazing people in these conversations as we talk about research and programs and we share our own personal thoughts, feelings and ideas.  I have met Kato and David and Mebra and Cornelia and Gordon and Mary and Keith and so many others who experience life and death on a very personal level.  There has been a long-running Global Health discussion on why maternal mortality remains so high in Sub-Saharan Africa which was started by the question raised by Jane on March 4.  A couple of weeks ago I consolidated responses into several broad categories: resources, education for girls and women, poverty, tradition and culture, funding, empowerment and the topic that keeps surfacing, political will.  I’ll add this to the end of this post.  There have been comments that cite statistics and data, programs, outcomes, but mostly there have been the comments about hurt and frustration and challenges and through the conversations incredible commitment to save lives and increase health and well-being.  And what I think often is not communicated in the research and the peer reviewed articles, is PASSION.

There has been another conversation about why public health is so often unrecognized as the powerful agent of change and life-saving interventions.  Think about the media, films, songs, TV shows.  Where are the public health professionals?  There are sexy doctors, there are romantic lawyers, there is Nurse Jackie, definitely detectives and police officers and crime lab specialists.  Public Health?

The passion of public health, the commitment to saving lives, the miracles that are perhaps sometimes lost in the data need to shine through like stars.  I invite all of my colleagues in public health to tell the stories of life and death and anyone who will listen, who must listen, to hear.  When I think about the challenges of saving lives, especially in maternal health and birthing, I think about the last verse of W.H. Auden’s poem September 1, 1939:

Defenseless under the night

Our world in stupor lies;

Yet dotted everywhere,

Ironic points of light

Flash out wherever the Just

Exchange their messages:

May I composed like them

Of Eros and of dust,

Beleaguered by the same

Negation and despair

Show and affirming flame.

To my dear colleagues around the world who continue to teach me about your work and commitment, I thank you for being the stars continuing to shine and show the way to life.

Why is maternal death still high in Sub Sahara Africa despite all the effort being made globally?  Posted by Jane on March 4, 2012

Literature referenced:

Declaration of AlmaAta

http://www.who.int/hpr/NPH/docs/declaration_almaata.pdf

Annie Feighery  http://participatoryapi.posterous.com/three-years-of-the-bright-conference-on-brandi

Hogan, M.C., Foreman, K. J., Naghavi, M., Ahn, S.Y., Wang, W., Makela, S.M., Lopez, A.D., Lozano, R., Murray, C. J. L.  (2010).  Maternal mortality for 181 countries, 1980-2008:  a systematic analysis of progress towards Millennium Development Goal 5. www.thelancet.com/journals/lancet/article/PIIS0140

Unger, J.P., Ven Dessel, P., Sen, K., & De Paepe, P. (2009).  International health policy and stagnating maternal mortality: is there a causal link? Reproductive Health Matters. 17(33), 91-104.

Karel Amaranth, MPH, MA.  MPH Thesis: Safe Motherhood By Design:  A Public Health Program Planning and Evaluation Project:  Empowering Women to Prevent Maternal Mortality 
  
 
Contact:   roguewaverose@gmail.com

www.positivedeviance.org

www.lifeforafricanmothers.org

Cornelia Osim Ndifon:  Determinants of Maternal Mortality Amongst Unbooked Patients in Calabar Teaching Hospital Nigeria:  A Four Year Study.  Contact:  lovecornel2002@yahoo.com

Riders for Health www.riders.org

Holistic care, Inter-relationship of resources, workforce, education, poverty reduction, nutrition

Trends in responses:

EMPOWERMENT:  Social injustice/human rights issue/gender equity

Women’s empowerment as a determinant of higher education, reduction of poverty, social status and ability to make informed health choices including spacing of pregnancies, contraception, healthy birthing practices, prevention of HIV

Women’s health as holistic including empowerment:  Inter-relationship of MDGs: maternal/child health, water, nutrition, sanitation, transport, education, agriculture

Community empowerment: Programs that Ask women what they want and need

TRADITION/RELIGION/CULTURE

Early marriage and child bearing

Religions that do not allow contraception

Women believe it is their fate or Allah’s/God’s will for them to suffer and die.

Cultural implications of having many children, i.e., virility of the father

Male dominated society (suggestions to engage men, rather than condemn them)

Female circumcision, violence against women

Very high fertility rates and multiple births (related to cultural and socio economic pressures)

EDUCATION OF WOMEN AND GIRLS

Specific to health/child bearing/reproductive health

General education of women and girls; reducing illiteracy

Developing women’s leadership

POVERTY

Association of poverty with low social status, poor nutrition*, no or limited access to healthcare,

Impact particularly on pregnant teenaged girls and unmarried women

Impact on low birth weight and infant mortality

*Nutrition:  Importance of reducing anemia, building strong bones and resistance to infections.

HEALTH RESOURCES

Supplies:

clean birthing kits, misoprostol, oxitocin, equipment in hospitals (often inadequate)

Healthcare facilities/interventions:

Inadequately staffed and equipped.

Not accessible by rural women

Services like EmOC not available to all women

Distance from healthcare facilities/transportation

Effectiveness of focus on home deliveries to reduce MMR/home birthing as a positive choice with clean supplies and birth attendant

Skilled attendance at births:

Traditional birth attendants

Negative: interfere with safe birthing

Positive:  need to be recognized, trained and engaged since many women continue to use them

Midwives

Community Health Workers: part of a decentralized health delivery system; performance based financing

Physicians (very little mention of physicians)

Limited resources for training  any of the above health providers.

Lack of healthcare infrastructure to deliver services to women

GOVERNMENT/POLITICAL WILL

Leadership not committed to healthcare infrastructure

Government policies that do not favor women

Inefficiencies in government, corrupt use of funding and cumbersome bureaucracies

Governmental should encourage economic development to support healthcare delivery infrastructure that supports community in a decentralized health system; grass roots empowerment rather than out of touch corrupt government programs

Improvement in MMR even in low income countries if there is political will is focused on health

FUNDING (Government and Private Sector)

Funding channeled to women’s health, education and empowerment

Informed donor base to ally funding for poverty reduction with funding to reduce maternal mortality

Performance based financing

SCIENCE

Evidence based practices:  what evidence is used to support programs and interventions?

Quality assurance in programs.

Research and successful interventions:  sharing the knowledge and replicating successes

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